That’s me there with my husband Mos lurking behind me as usual.
In the spirit of Coeliac Awareness week and following the lead of other coeliac bloggers I decided to post up my diagnosis story which began just under 8Â years ago, at age 25. I should warn you that this might be a bit graphic but other coeliacs will understand!
As long as I can remember I had stomach ‘issues’. As a child, my parents put this down to nerves/excitement/bugs and to be honest it wasn’t that prevalent in my day to day life – I think I probably just had flare ups. Â To be fair to my parents, I wasn’t failing to thrive, I wasn’t fatigued – I just puked or felt like puking quite a bit so I can understand why neither they nor my GP picked up on anything.
As a teenager,one of the first really obvious flags to me that something was wrong was that every time I ate Burger King (usually out with my friends hanging around a shopping centre) it came up straight away. Like, within minutes. Funnily enough, the same never happened with McDonalds – perhaps showing the absence of real wheat in their burger buns?
Anyway, again, there was a bit of puking here and there after my breakfast/dinner (again, put down to nervous stomach but really I was rejecting gluten) and I often got really bloated. This was put down to ‘women’s troubles’.
Wombs – you have a lot to answer for but you can’t get blamed for CD! My poor mam tried everything she could think of including buying me herbal remedies for water retention. My GP Â gave me a sympathetic nod and the hormones chat so I suffered on.
Into college I went and to be honest, had very little in the way of symptoms during this time. Â I even spent a year in Australia and found a new love…. BEER… which you would think would be like a flag to a bull but I still felt grand….until I came back!
I think a year of bad diet and beer gave my system a shock and when I got back to Ireland I was experiencing fatigue, bloating, puking, constipation….everything. Not nice and definitely not pretty. After a year of this I eventually went to my GP and started looking for answers.
Given a family history with stomach problems, including ulcers, I was put on ulcer meds for a month which cost a fortune and did NOTHING. I went back and got bloods done and HALLELUIAH, got tested for CD.
The bloods indicated CD so I was sent for an Endoscopy which is basically a camera down your throat checking out your stomach lining and small intestines. I have intravenous sedation which I highly recommend – any doctor who tells you plenty of people are grand getting it done with no sedation are LYING.
Results don’t lie, my poor villi were as flat as pancakes and a coeliac was born. I embarked on a GF diet straight away from diagnosis and noticed my energy increasing and symptoms waning within months. Further testing showed I was very deficient in vitamin B12 because my absorption had been poor so this was boosted with injections for a 6 months period.
Now, I get my bloods done once a year (ish) to make sure all is good, eat gluten free and miss tayto and jacobs cream crackers on daily basis – but it’s worth it.
Hi Donna, am Laura. I was diagnosed with coeliac when i was only 8. I am now nearly 22 so yea most of my life ive been on a gluten free diet. I was so sick myself, in and out of the hospital, on the drip and always getting tested for so many things. My mum said i was nothing but skin and bones, i was so ill al the time, my stomach was so bad i couldn’t even keep water down.
I have plenty of experience in cooking baking, you name it. I started up my own website full of gluten free recipes to share with other coeliacs. Loads of people find it very helpful. You should have a wee look. http://www.laurasglutenfreekitchen.com/
All is welcome
Love your blog….thanks for sharing.